THE Queen Letizia met this Monday at the Palacio de la Zarzuela with the Spanish Association of Amyotrophic Lateral Sclerosis (ADELA) which gives the floor to the sick of SLAa group that has been waiting three years for legislation that addresses its medical and social needs. The Queen’s hearing took place contrary to legislative delay of the standard – there are currently three laws that are still under consideration in Congress. This situation has led ALS patients to denounce on numerous occasions the abandonment and impotence of the Government of Pedro Sanchez.
Her Majesty held a meeting in the Magnolia Room with a representation of adELA, led by its President Carmen Martinez Sarmientowho presented the association’s work to the Queen. Martínez Sarmiento personally thanked, on behalf of the entire class, the time that Mrs. Letizia dedicated to the group. This statewide nonprofit organization helps improve the quality of life of people with ALS and those suffering from other immune system diseases. motor neuron.
60 “blockages” to the ALS law
So the Queen has resumed her official agenda, dedicating part of it to ALS patients, while the government continues to delay the adoption of the law it has been waiting for so long. Since 2019 (i.e. during two legislatures), the Executive of Pedro Sánchez has stopped the norm more than 60 times. The last of these took place that same year, when the PSOE and Sumar blocked it by extending the deadline for submitting amendments.
In addition, the three laws The proposals that are still being processed were from different parties: the PP was the first party to register its own, then Junts and, later, the proposal from the PSOE and Sumar arrived, while that of Vox was rejected.
Even the socialist MP Carmen Martinez He stressed how “late” we are with the law that affects “so many people who are dying to live.” For her part, the PP’s deputy secretary for Health and Education, Esther Muñozdenounced that the PSOE did not speed up the process this summer: “They want to live and they can’t, they don’t have time, stop extending the deadline for amendments and let us work.”
This is a message for the Spanish government, led by Mr. Pedro Sánchez @sanchezcastejon. 4,000 Spaniards with ALS die and every year 1,000 more patients die. They have abandoned us and I would like to know the reason. Thank you for your time. All the best pic.twitter.com/dfNMr40Q23
– Jordi Sabaté Pons (@pons_sabate) February 27, 2020
