Carlos Ardanaz, known as El Puma And diagnosed with ALSwill be responsible for launching the rocket this Friday at noon Elite parties afterwards, his candidacy was the most voted with 434 of the 672 popular votes. He will do it “with emotion, gratitude” and the aim to reach as high as possible The collective’s demand: “ALS law now!”
In this sense, it encourages you to go to the rocket with t-shirt green that the ANELA association will sell under this motto on Thursday from 5 p.m. to 7 p.m. on a stand on the ground floor of the City Hall, the profits of which will be used to maintain the services provided by this entity. “We want fill the square with white and green to support those affected and the demand for the implementation of the ALS law,” explains Ardanaz, a law that would help address the many costs of the disease by allowing those affected to lead a more dignified life.
According to him, choosing a ALS sufferer to launch rocket in Oliteas also happened in the festivities of Tudela or Sanfermines, is another example of the fact that “people are with us, they sympathize with our situation and support our demands, now we need politicians to listen, take the law out of the drawer and approve it.”
Carlos Ardanaz will go to the coach with his family, a starting point for a holiday that, despite the limitations and fatigue, will be experienced “as always, with lunches, dinners and tinkering with the crew.” “The launch of the rocket is a great joy and an intense emotion. It people turned to meThey stop me to congratulate me, to tell me that I deserve it… I didn’t expect it.
Carlos is an old acquaintance of the city, having created a football team for the little ones “Los Pumas”, in addition to playing in Osasuna and Erriberri and selflessly launch friendly matches, championships, triangles… A work which was also recently recognized in a tournament Solidarity for ALS celebrated in his honor.
Amyotrophic lateral sclerosis is a neurodegenerative disease of the nervous system, of unknown origin and without effective treatment, for which the brain loses the ability to initiate and control muscle movementsproducing progressive atrophy that progresses to paralysis. The public system covers only 10% of the necessary care, leaving this responsibility almost exclusively in the hands of family members, who cannot afford these expenses.
ANÉLA is a non-profit entity that works to improve the quality of life of those affected and their families through comprehensive care including physiotherapy, speech therapy, social assistance, support and the loan of technical aids, being part of the Navarre federation COCEMFE.
