The bill to improve the quality of life of people with amyotrophic lateral sclerosis (ALS) and other diseases or neurological processes of great complexity and irreversible evolution is now a reality. As LaSexta has been able to confirm through popular sources, the agreement between the PSOE, the Popular Party, Sumar and Junts It was agreed this Monday at midnightA pact that represents a new step forward in relations between socialists and popular parties and that adds to the consensus reached to renew the General Council of the Judiciary (CGPJ) as well as the victories between the two formations during the mandate of Pedro Sánchez.
This bill is based on a consensus based on three texts prepared by the popular parliamentary groups, Junts per Catalunya, Socialista and Sumar, which were built, in turn, on the basis of a proposal prepared by the group of affected people ConELA. This proposal, born from the reality of people affected by amyotrophic lateral sclerosis, paves the way for improved care other neurological processes with similar condition and prognosis.
Regarding the changes, a series of legislative amendments are proposed aimed at to ensure the best quality of lifethrough the rationalization of administrative procedures for recognizing disability and dependency, in better integrated care between social and health systems, for people suffering from serious neurological processes.
An agreement between parties that the Minister of Inclusion, Social Security and Migration, Elma Saiz, appreciated positively this Monday, especially for having reached an agreement with the party of Alberto Núñez Feijóo. “It is the government of agreements”he expressed.
On the PP side, Feijóo also expressed satisfaction with the agreement, ensuring that “a window of opportunity” has opened for the ALS law to become a reality. “I hope and wish that the Congress of Deputies approve it unanimously in the coming months” said Feijóo, who recalled that the PP’s proposal coincides with that of the associations of patients with amyotrophic lateral sclerosis.
The National Confederation of ALS Entities (ConELA) expressed confidence last Friday that the ALS law would be approved in the coming weeks. In addition, it defended that the agreed text is the result of “intense” months of work and collaboration.
“The agreement covers most of our demandsamong which stands out the recognition of a subjective right and the monitoring and continuation of specialized care 24 hours a day for people with advanced ALS, in the face of the avoidable death that has hit us and is hitting us so hard,” explained the president of ConELA, Fernando Martín.
