The UPN declared this Friday that “Navarra budgets for 2025far from meeting the real needs of patients affected Amyotrophic lateral sclerosis (ALS) and their families, demonstrate a worrying lack of interest” on the part of the provincial government “in responding to the repeated requests of these people.”
In a press release, the regionalists criticized the fact that for the VivELA project, “a comprehensive program aimed at improving the quality of life” of people affected by ALS in aspects such as physiotherapy, speech therapy, occupational therapy, social work, etc.the budgets of the Chivite government “They only include the modest sum of 27,000 euros.”
For this reason, and to “alleviate the situation of this group”, the UPN registered an amendment to the project General Finance Law of Navarre by 2025, worth 300,000 euros.
The regionalist party stressed that “There are 46 Navarrese diagnosed with ALS” and stressed that these people ” have significant needs for home support, as well as technical and economic assistance and rehabilitation services, the cost of which is estimated for families ranging from 37,000 euros per year in the phases initial costs at 114,000 euros in the initial phases. “Unfortunately, for another year, with the largest budget in the history of Navarre, these needs were left aside,” they said.
The UPN considers “alarming, in addition to showing zero sensitivity and inconsistency with its usual speeches” that, in this context, “the Government of Navarra decided not to allocate enough specific resources to these people, thus perpetuating the lack of effective care for a particularly vulnerable population.
Likewise, they explained that “the recent approval of the ELA law in the Congress of Deputieshailed as a major legislative step forward, includes measures aimed at improving the quality of life of these people, by recognizing them as people in a situation of dependency and rationalizing access to help.
“However, without adequate funding and without putting in place the necessary mechanisms to make the law a reality, people with ELA will continue to not have its needs met“, they added.
For regionalists, “Navarra must take a step forward and must include a specific economic item in the 2025 budgets which cover the needs of these 46 Navarrese men and women suffering from ALS and their families.” “Only in this way can we guarantee dignified and adequate care, in line with the expectations created after the approval of the ALS law”, they concluded.
